Day 38

Today was eventful. So Jet's CRP's were 6.6...still on the climb. And...in addition to that he's developed a new rash. It comes and goes but does this consistently almost 2 hours after his oral dose of cyclosporine.

 

 

These pictures were actually taken yesterday and the day before. I didn't get one today but it was much worse. It stays for a couple of hours and then goes away. It's interesting in its onset because it just so happens to present at the same time the Dr. wants labs for the peak levels of cyclosporine in Jet's body. We'll be talking to the Dr. some more about this.

 

Speaking of peak levels...we received the results of Jet's peak and trough levels...trough right on target and peak too high. So...we've come to the conclusion that the cyclosporine is not working and was most likely not the reason for the decline in Jet's CRP's. It was most likely due to the Methylprednisolone. Dr. Burns has opted to decrease the cyclosporine dose (this did not help the rash) and start giving the steroid (MP) again...also orally. We'll see how this works. She's decreased the dose of the steroid by half. Since it is a steroid I think the lower we start the better. We can always go up.

 

I don't imagine Jet's CRP's will reflect the steroid tomorrow morning. I think that will be Sunday's news. Needless to say we'll be here through the weekend for sure.

 

We had a rough night last night (Thurs.) because...well be because of a certain health care professional wanting to do unnecessary things at midnight. So tonight Jet is OFF of his monitor and not being disturbed between the hours of 8pm and 6am. HOLY HALLELUJAH!