Day 35

So...today we did nothing! Which is okay because Jet is still improving so that's all that really matters. His CRP's were 1.2 today and Dr. Burns seemed very happy about that (she high fived me). We were scheduled to do the CT Angiogram and an Echocardiogram but things changed literally overnight. They can't do the CT Angiogram while Jet has a PIC line, and since we WILL NOT be taking that out, the angiogram will have to wait. Dr. Burns has opted to have it done as an outpatient service in about one month. She said that will give his little veins some time to heal. The poor kid is such a hard stick...nobody can find veins on him because he's soooo chunky! I'll take the credit for that :).

We were still going to go ahead with the echo this morning so they told me not to feed him after 4:00am because the echo was scheduled for 9:00am and they were going to have to sedate him. Last night nurses and resident doctors became a little concerned because Jet's temperature was pretty low as was his heart rate. I don't know if you all are familiar with the monitor in a hospital room but essentially when you're hooked up to it, it measures your heart rate, your respirations, and your oxygen. Jet's heart rate stayed in the 70's and low 80's...sometimes going down to 60. With that and a low temp. they didn't feel comfortable sedating him. So they did an EKG instead. It was normal.

I talked with Dr. Burns this afternoon. She wants to increase his Lovenox (blood thinner) because she said the levels in his blood were low. She wanted to start him on the oral steroid but later had a change of heart after talking with another doctor and decided to take him off of it completely. She said the cyclosporine levels in his blood are perfect. She wants to go ahead with the echo in the morning so we're back to not eating after 4:00am, which makes for a lovely morning as I'm sure you can imagine. Dr. Burns seems to think that the low temperature and slow heart rate are a result of the steroid, so we'll see how he does tonight. He is wearing clothes today! Poor kid...normally he gets heated pretty quickly so he's always wearing a light layer. With all the fevering he's pretty much just been in a diaper. Today we put him in some sweats, a tee shirt, and some socks. Poor baby just needed some clothes!

All in all he's doing wonderful today. He's had some good sleep and he's warm :).