Day 36

Today was a good day as far as news goes. So what's that? Two days in a row? Jet's CRP's were 0.5. That's below 1, which means we've reached our goal. Yay!!! He's now able to take his meds orally instead of IV. They took him off of the steroid which is good because steroids can wreak serious havoc on the body. They said after about a week we would've started noticing side effects...so thankfully he was only on them for about 3 or 4 days.
Also...he had his Echo today. They sedated him with some oral sedative and let me tell you...if I could get my hands on some of that. I've been trying to decide which nurse I should get in good with here. Dr. Burns came in to talk to us about the results and she said if we were going to get any good news about the echo that the news we got would have been just that! His little arteries have decreased in size...one of them a whole mm, which she said is HUGE! There is one area that has a slight bulge...and we're going to keep our eyes on it. I would have to figure out how to draw this and upload it for you all to see...but for tonight I'll just tell you it could be so much worse! If he has to have a bulge I think it's better to have it where it is. He has another echo scheduled for next Wednesday and some more labs to make sure he's staying on the right track.  He was in a wonderful mood today, and he's gotten some good sleep. Sleep I envy!
I think that's about it as far as today's updates go. I know there are a lot of prayers going on out there...so many people of various faiths. Thank you so much. I know Heavenly Father hears those. We are so grateful to have such wonderful friends and family members who love us. Jet is such a lucky baby. We are so fortunate to have such a beautiful little boy. Actually, we have two!

 

Look what I found! Dax...hospitalized. He makes it look so cool.

 

 

And I just love this one.